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Webster boy raises awareness for Rare Disease Day

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ROCHESTER, N.Y. (WROC) — Thursday was Rare Disease Day and one local boy was doing his part to raise awareness.

8-Year-old Lukas Urbanski of Webster who himself has a rare disease, has reached out to local business owners to encourage a community effort.

Businesses including Ridge Donuts, Schutts Apple Mill, and Secret Ingredient Cupcakery are joining the initiative by donating a percentage of their profits to the Channeling Hope Foundation.”

Urbanski and his mom are also speaking to his classmates at Dewitt Road Elementary on why awareness is important now more than ever.

​ ROCHESTER, N.Y. (WROC) — Thursday was Rare Disease Day and one local boy was doing his part to raise awareness.

8-Year-old Lukas Urbanski of Webster who himself has a rare disease, has reached out to local business owners to encourage a community effort.

Businesses including Ridge Donuts, Schutts Apple Mill, and Secret Ingredient Cupcakery are joining the initiative by donating a percentage of their profits to the Channeling Hope Foundation.”

Urbanski and his mom are also speaking to his classmates at Dewitt Road Elementary on why awareness is important now more than ever. Read More Local NewsRochesterFirst  

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